About My Autistic Life

Hello everybody. As I’m sure you’ve already figured out by finding this blog, my name is Phil Evans and I’ve got autism.

Well, Asperger’s Syndrome if we’re going to be extremely precise on this one!

You may read this and think that it’s quite easy for me to tell the world such a statement but you’d be mistaken.

I'm Phil, and I'm tired. I've had a long journey which still isn't over!

I’m Phil, and I’m tired. I’ve had a long journey which still isn’t over!

I’m not exactly a person that would blurt these facts out at every opportunity though I’ve come to a decision where I’d love to let people know that being autistic isn’t something shockingly awful. It can be rewarding in the sense that chances come about regularly to challenge systems and prove those of a medically trained profession wrong.

What an info burst there…I’ll slow down a little for you and run through things piece by piece!

From birth it was clear something wasn’t right as I had a very high pitch cry apparently, something which I have no recollection of personally, though I’m told by my mother that my stunning use of tiny vocal chords which gave specialists an idea that there was something abnormal about me.

Time on a special baby care unit followed just 24 hours into my young life but this wasn’t to be for long, these tests being merely standard with any slight birth abnormality such as the noises I made which therefore meant I’d never return again.

Following this I’d taken my time learning how to walk as my muscles were very floppy and I wasn’t developing to the pace which a normal toddler would, meaning that frequent trips to an assessment unit were in order to establish just what my issues were.

It was around this time when my parents were told the words that nobody would want to hear about their child:

“I’m sorry, your son may not be able to walk, talk or do many basic functions.”

Of course I don’t remember the exact sentence word for word but that was pretty much how my problems were explained on a bit of a surprising day!

Those people have been proved wrong ever since and it is for these reasons that I’ve decided to create this insight which will hopefully inspire and interest in equal measure.

There have been pitfalls along the way including getting bullied in both primary and secondary school but life has had many positives too, getting into university being number one on that list but these ups and downs will be written about in future updates.

As for other bonuses, let me end this particular post with those as I’m over the moon about them all right now.

Diagnosis came at nine years of age. By this time my primary education was well underway at Pelsall Village JMI School and I’d being coping well with everything but once confirmation of my disorder came, help was laid on to get me through studies which proved to be very helpful.

A move to St Chad’s Primary School followed at the start of Year Six with relocation to a new family home, though nothing really changed with my needs until I hit a torrid time at high school.

Netherstowe High School were not very good at all to be honest, my learning skills and behaviour always got complimented but any help I got was awful.

This shortfall came from a terrible special needs department which did more harm than good in some ways, something I’ve never forgotten as issues with it pretty much encased my teenage years meaning that I’d left the schooling system taking little faith with me.

Things were soon to change however as further education came over the horizon with college and later university.

South Staffordshire College was where I’d begin to find my feet as I completed a GNVQ Intermediate in ICT which would later help me in gaining a BTEC National Diploma in Media Studies, something that made me very happy in the years it taken to gain qualifications as I became a man and not the boy who had gone into the classroom as a 16-year-old on day one feeling frankly terrified!

From this, thoughts of university began to entertain my mind and it was whilst studying for my BTEC that I applied through UCAS for a place studying Sports Journalism wherever I’d be accepted.

After gaining the correct entry criteria my dream became reality as I got offered a place at Southampton Solent University.

Yes, it was a fair journey from my Midlands home but such a thing didn’t matter as I’d been accepted and had the chance to find some independance only found from living under your own steam.

Initially it was amazing, though naturally home sickness kicks in and then so does the work but this wasn’t a problem really at all for me.

Everything contained much promise and excitement which was made even better with the fact that I settled down very quickly, this making my fresher experience fly by very quickly which in some ways became a blessing and a curse.

Year two was nothing like what had preceded it, maybe I’d buckled down a little too much and not had enough fun while the option was there?

Months moved on and this theory was slowly proved right, the mental wall had been hit and boy did I feel it’s wrath.

Nevertheless, I returned in January 2011 after completing an eight-month deferral period which began in April 2010 and I haven’t looked back since.

I’m a graduate now, I’m a blogger and I have big plans for the future that will hopefully help other autistic people. I just need to work on them!


17 Responses to About My Autistic Life

  1. stuart gorman says:

    thanx phil im currently at college and one of my projects is on autism,its been an insight into autism, and through knowlege and understanding we can all create awareness which i think is the key in providing the way forward and bin the negative attitude

    • philevans says:

      Hi Stuart,

      I agree entirely with those views. Even though Autism is getting much more press now than it used to, there is still a popular misconception that everybody is equal who has the condition.

      It’s time to shake off those shackles and change things, what do you study by the way?

      Look forward to hearing more info soon,

      Phil Evans

  2. outoutout says:

    Hi there – found your blog via @AweInAutism. I’m an Aspie living in Austraila, raising 2 children who are also on the spectrum. It’s nice to “meet” you and I’ll definitely keep reading. Cheers!

    • philevans says:

      It’s nice to meet you too!

      Cheers for having a look and I’m glad what I’ve wrote is of interest, great to know you’re interested on the other side of the world!

      Just now I’ve began following you on Twitter, hope that’s okay? Feel free to continue reading!

      Phil Evans

  3. Stephanie Williams says:

    Hey Phil-I found your blog via twitter. Have your heard of Temple Grandin? She is an extremely successful woman in the agricultural community and she is autistic. You may be able to relate to many of her stories-check it out!

    http://conversations.psu.edu/episodes/temple_grandin

    • philevans says:

      Hi Stephanie,

      Thank you for pointing me in the direction of Temple’s work. I’d not heard about her until you’ve mentioned her, what a fantastic ambassador for Autism.

      Hope you’re well and like what’s on here, cheers for the message!

      Phil Evans

  4. Garry Burge says:

    A great website, just having a look at now. I am also an adult with Asperger Syndrome from Brisbane, Australia and was diagnosed by Dr Tony Attwood.

    • philevans says:

      Hi Garry,

      Thank you for getting in touch, promoting this blog and for leaving such positive comments. It’s nice to know that Autism has global appeal rather than just national support.

      Hope you’re well,
      Phil Evans

  5. Hi Phil,

    My name’s Rhodri. I work for the NAS in Wales. We spoke over the phone before Christmas, but I don’t know if I have your email address.

    I thought I should let you know that the NAS has published a new report in Wales called ‘The Life We Choose: Shaping Autism Services In Wales’. You can find more information on http://www.autism.org.uk/thelifewechoose, and download the report from here as well.

    I was wondering if you’d want to write a blog post on it. You can contact me on rhodri.davies@nas.org.uk if you’d like to disscus anything.

    Best wishes

    Rhodri

    • philevans says:

      Hi Rhodri,

      Nice to hear from you as I’m glad that our phone call was memorable!

      I may write a new post over the weekend as I’ve sadly been pretty inactive on here since returning to university, this being something which will probably chart my achievements throughout 2011 to date but I’d love to comment on Autism in Wales soon if that’s okay?

      Any further articles probably won’t be published for a month or so but please do rest assured that I’d love to mention your changes.

      Hope to hear from you again in the future,

      Phil Evans

  6. kellyjane66 says:

    hi phill, im just asking for advise,my son is 7 an gets teased at school relentless because he has aspergers,my son is quite smart but socially not to good. so now he fights the kids who tease him an doesnt want to go to school,it brakes my heart did you have to deal with this if so how did you cope?my son is really good at computers.

    • philevans says:

      Hey Kelly,

      I’m sorry to hear about your son’s situation.

      I have had pretty shocking communication skills in my earlier years too and if I’m going to be truthful to you, that didn’t really start changing until I began college at 18-years-old.

      I never really hit back as I was bullied on two occasions, at around the same age as your son is now and also at 12-years-old, but the problem eventually evened itself out.

      Bullies never prosper. Children can be cruel too but I would suggest that you speak to the school, and tell your son to not fight back too.

      It may be only too easy for him to retaliate, but not doing so will only show your son’s school that he is not the problem. The bully is.

      Hopefully this helps?

      Phil

  7. kellyjane66 says:

    thanks phil,i have been to the school an took them to the head education tribunal,matthew was physically abused last year by year 6 students had his groin kicked ,they ballooned it was bad,he got robbed of his lunch money often,now i order his lunch,he had his head pushed into the bus window an split his lip an the school said if he didnt have autism he could of prevented his face hitting the window,i was godsmacked,i asked what do you mean his autism,they said autistic children dont have good balance.i have tried other school to cater for him but he doesnt fit crit because he can read at such a high level an good at maths so i am so stuck an fustrated!!!matthew is so loving im at a loss,matthew shouldnt hit back i agree but these children get in his face i mean in his face he asks them to move or he does an they follow him an they want him to crack they make loud noises at him an yell in his face,ive witnessed it myself.my problem bares with the teachers why cant my funding be used in the playground!!!its not fair!im so heart broken to think matthew will have to live with this or deal with this untill hes 18 i will keep fighting for him an others i need some supporters!

    • philevans says:

      Hi Kelly,

      If I’m honest, I’m not too sure if I can offer you too much more in terms of advice as I have never been in your situation or your child’s situation, in terms of severity.

      The school should not have said that though in my opinion as by saying that his autism caused the problem, the logic implied seems completely wrong.

      I hope you find supporters but is there no way at all that he can be moved to another school?

      Phil

  8. Hey,

    I’m glad for you that you grew up in the UK.

    #f.

  9. Great blog, I haven’t managed to read all your posts but I will eventually! It’s great your showing awareness! You have courage that I wish I had!
    Check out my blog if you have time too!
    All the best :)

    • philevans says:

      Hey :) ,

      Thank you very much for your kind words and I’m glad you’ve liked what you have read.

      I’m just writing about things that are important to me and by sharing it with yourself and others, I enjoy doing it.

      There’s no real courage there, but I hope you can take something from what I’ve written and build your own up.

      I’ve followed you and will have a peek at what you’re up to!

      Phil

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